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informal_care

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Informal care

Participants were asked whether they gave unpaid care to someone close (family/friend) because of long term limitations and/or health problems, excluding unpaid care of strangers (i.e. volunteer work) or the care for healthy children (section: lifestyle & environment).
Note that several subcohorts answered more detailed questions about informal care in the context of the following additional assessments:

  • INFQ, a questionnaire focusing on informal care in general
  • ACTQ, a questionnaire focusing on activities including volunteer work and informal care
  • AUTQ, a questionnaire focusing on autism, including the informal care for autistic persons.
Questions English Questions Dutch Code Variable Assessment Age
Do you give informal care? Geeft u mantelzorg? informalcare_presence_adu_q_1 INFCARE2 1C 2B 3A AUTQ 18+
Who do you give informal care? Partner / Father / Mother / Father-in-law / Mother-in-law / Son / Daughter / Son-in-law / Daughter-in-law / Brother / Sister / Friend or acquaintance / Neighbour / Someone else Ja, ik geef deze zorg aan mijn: Partner / Vader / Moeder / Schoonvader / Schoonmoeder / Zoon / Dochter / Schoonzoon / Schoondochter / Broer / Zus / Vriend of kennis / Buurman of -vrouw / Iemand anders recipient_informalcare_adu_q_1_a-n INFCARE2A-N 1C 2B 3A INFQ AUTQ 3A 18+
If you give informal care, on average how many hours per week do you help with… Totaal … uren gemiddeld per week voor
household tasks (such as preparing food and drinks, cleaning the house, washing, ironing and sewing clothing, grocery shopping or small chores around the house or garden etc.)? huishoudelijke taken (zoals het klaarmaken van eten en drinken, schoonmaken van het huis, wassen, strijken en naaien van kleding, boodschappen doen of kleine klussen in huis of in de tuin etc.) care_housekeeping_adu_q_1 INFCARE2O 1C 2B 3A 18+
personal care (such as getting dressed and undressed, bathing, combing, shaving, going to the toilet, moving around indoors, eating, drinking or administering medication etc.)? persoonlijke verzorging (zoals aan- en uitkleden, wassen, kammen, scheren, naar het toilet gaan, verplaatsen binnenshuis, eten, drinken of toedienen medicatie etc.) care_physical_adu_q_1 INFCARE2P 1C 2B 3A 18+
other activities (such as moving around outdoors, making day trips and visiting family or friends, having contact with health care professionals - for example accompanying visits to the doctor; the hospital; a therapy, arranging help, medical devices and/or home adjustments, arranging financial and administrative matters etc.)? andere activiteiten (bijv. uitstapjes en bezoekjes, contacten met gezondheidszorg, mee naar ziekenhuis; regelen hulp, regelen van financiële en administratieve zaken etc.) care_activities_adu_q_1 INFCARE2Q 1C 2B 3A 18+
Since when do you give informal care? (month/year) Vanaf wanneer geeft u mantelzorg? (maand/jaar) care_start_adu_q_1_a/b INFCARE3A/B 1C 2B INFQ 18+
Do you live at the same address as the person to whom you give informal care? If you give informal care to more than one person, do you live at the same address as one of these people? Woont u op hetzelfde adres als degene aan wie u mantelzorg geeft? Indien u aan meer dan één persoon mantelzorg geeft, woont u op hetzelfde adres als één van deze personen? care_address_adu_q_1-2 INFCARE4/INFQ 1C 2B INFQ 18+
Can you indicate with a number between '0 to 100' how heavy you find it to give informal care? The closer to '0 ', the less heavy you think giving informal care is. And the closer to '100', the heavier you think giving informal care is. Kunt u aangeven met een getal tussen ’0 tot 100’ hoe zwaar u het vindt om mantelzorg aan uw naaste te geven? care_burden_adu_q_1 INFCARE5 1C 18+
Can you indicate with a number between '0 to 100' how much satisfaction you get from giving informal care? The closer to '0', the less satisfaction you get from giving informal care. And the closer to '100', the more satisfaction you get from giving informal care. Kunt u aangeven met een getal tussen ’0 tot 100’ hoeveel voldoening u haalt uit het verrichten van uw mantelzorgtaken? care_satisfaction_adu_q_1 INFCARE6 1C 18+
You have just answered some questions about your position as an informal caregiver. Informal care will become increasingly important in the future. May we approach you in the future to ask you some additional questions about your position as an informal caregiver? U hebt zojuist een aantal vragen over uw positie als mantelzorger beantwoord. Mantelzorg wordt in de toekomst steeds belangrijker. Zouden wij u in de toekomst eventueel mogen benaderen voor wat extra vragen over uw positie als mantelzorger? care_questionnaire_adu_q_1 INFCARE7 1C 18+
Do you give unpaid help/care to one or more people who are unable to do this for reasons other than long term limitations and/or health problems? For example because they prefer to spend time on other things or because they are not good at something; think of babysitting grandchildren, helping in the household, cooking food, administration, etc. Geeft u onbetaalde hulp/zorg voor 1 of meer personen die dit om andere redenen dan langdurige beperkingen en/of gezondheidsproblemen niet zelf kunnen doen? Bijvoorbeeld omdat zij graag tijd aan iets anders besteden of minder goed zijn op een bepaald gebied. care_presence_adu_q_1 INFCARE8 1C 18+
On average how many hours per week do you spend on giving this type of unpaid help? Ja, totaal xxx uren gemiddeld per week care_presence_adu_q_1_a INFCARE8A 1C 18+
Do you provide (informal) care to someone close to you with a health problem in your private life? Verleent u in uw privé-situatie (mantel)zorg aan een naaste met een gezondheidsprobleem? care_presence_adu_q_2 OVERGANG22A MAWQ 40-67
How many hours per week do you provide (informal) care? Hoeveel uren (mantel)zorg verleent u per week? care_presence_adu_q_2_a OVERGANG22B MAWQ 40-67
On average how many hours per week do you spend caring for one or more family members? Hoeveel uren besteedt u gemiddeld per week aan zorg voor een of meer familieleden (gezinsleden niet meegerekend), vrienden of buren? care_timespending_adu_q_1 TIJDSB2 1A 18+
Not applicable, I do not provide care for family members, friends or neighbors. Niet van toepassing, ik verleen geen zorg aan familieleden, vrienden of buren care_timespending_adu_q_1_a TIJDSB2A 1A 18+
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informal_care.1641980177.txt.gz · Last modified: 2022/01/12 10:36 by simone