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The Widespread Pain Index quantifies the extent of bodily pain on a 0-19 scale by asking Lifelines participants if they have had pain or tenderness in 19 different body regions over the past week, with each painful or tender region scoring 1 point (section: Diseases & symptoms).
Note that pain was also assessed in Lifelines participants as a symptom of several specified medical conditions.
The WPI originated as a part of the Fibromylagia Survey Questionnaire (FSQ) that sets diagnostic criteria for fibromyalgia. The full FSQ also contains a symptom severity score (SSS) for the following symptoms: fatigue, waking unrefreshed, cognitive symptoms and somatic symptoms 1). In Lifelines, this information can be derived from other variables (i.e. fatigue (general), Symtoms (SCL90), and various cognition-related variables).
This instrument is required for the diagnosis of fibromyalgia in epidemiological studies. Scoring above a cut-off on this scale is one of the three diagnostic criteria for fibromyalgia. Including it in the Lifelines screening will add to a new diagnosis in the Lifelines dataset. The presence of fibromyalgia is currently only questioned by self-report, but recent studies indicate that this methodology misses 77% of the fibromyalgia diagnoses 2).
A recent German study showed that the reliability, convergent and discriminant validity of the FSQ were good, however, the The WPI was not evaluated separately3).
Questions English | Questions Dutch | Variable | Assessment | Age |
In the previous week, how much were you bothered by: | In welke mate werd u de afgelopen 7 dagen gehinderd door: | |||
Headaches | Hoofdpijn | SCL90SOM1 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Faintness or dizziness | Duizeligheid | SCL90SOM2 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Pains in heart or chest | Pijn in de borst of hartstreek | SCL90SOM3 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Pains in lower back | Pijn onder in de rug | SCL90SOM4 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Nausea or upset stomach | Misselijkheid of een maag die van streek is | SCL90SOM5 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Soreness of your muscles | Pijnlijke spieren | SCL90SOM6 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Trouble getting your breath | Moeilijk adem kunnen krijgen | SCL90SOM7 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Hot or cold spells | Je soms er warm, dan weer erg koud voelen | SCL90SOM8 | 1A 1B 1C 2A QEAR NEXT | 18+ |
Numbness or tingling in parts of your body | Een verdoofd of tintelend gevoel ergens in je lichaam | SCL90SOM9 | 1A 1B 1C 2A QEAR NEXT | 18+ |
A lump in your throat | Een brok in je keel | SCL90SOM10 | 1A 1B 1C 2A QEAR NEXT | 18+ |
N/A | Je lichamelijk erg slap voelen | SCL90SOM11* | 1A 1B 1C QEAR | 18+ |
Feeling weak in parts of your body | Je lichamelijk ergens slap voelen | SCL90SOM11A | 2A NEXT | 18+ |
Heavy feelings in your arms or legs | Zwaar voelen in armen of benen | SCL90SOM12 | 1A 1B 1C 2A NEXT | 18+ |
Discussion
Het valt me op dat als ik op fibromyalgie zoek, ik niet op deze pagina kom. Ik snap hoe dat komt: de Nederlandse term komt er niet op voor. Misschien zou het handig zijn om het zoeksysteem aan te passen zodat Nederlandse termen ook werken, of de Nederlandse term te vermelden. Want je komt er wel mee op andere pagina's, dus dat wekt de indruk dat we alleen self-report diagnoses hebben.