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Autistic Traits (AUTQ)

The Autistic Traits questionnaire is an additional assessment among adult Lifelines participants.
The digital questionnaire was developed at the initiative of the Autism Research Center of Cambridge University (UK), in collaboration with the Sarr (Parnassia group) in Rotterdam (NL).
The questionnaire consists of the 10-item adult version of the Autism Spectrum Quotient, plus some additional questions about participants' experience with informal care in general, and informal care of autism spectrum disorder (ASD) patients in particular.

Protocol & response

The digital questionnaire was sent out between september and december 2019.
~110,000 adult Lifelines participants received the questionnaire, of which ~38,000 participants (35%) responded.

Variables

The questionnaire consisted mainly of the Autism Spectrum Quotient.
In addition, non-binary gender was assessed.

The following additional questions were asked about autism spectrum disorder:

Questions English	Questions Dutch	Code	Variable	Assessment	Age
Are you diagnosed with autism?	Is bij u autisme vastgesteld?	autism_diagnosis_adu_q_2	AUTISME11	AUTQ	18+
In what year where you diagnosed with autism?	In welk jaar is autisme bij u vastgesteld?	autism_diagnosis_adu_q_2_a	AUTISME12	AUTQ	18+
Do you have a biological first-degree relative who is diagnosed with autism?	Hebt u eerstegraads bloedverwanten (kinderen, ouders of broers/zussen) bij wie autisme is vastgesteld?	autism_diagnosis_fam_q_1_a-e	AUTISME13A-E	AUTQ	18+

Furthermore, some questions were asked about informal care, in addition to 2 basic informal care questions:

Questions English	Questions Dutch	Code	Variable	Assessment	Age
Since when do you give informal care to your partner / father / mother / father-in-law / mother-in-law /son / daughter / son-in-law / daughter-in-law / brother / sister / friend/acquaintance / neighbour / someone else? (month)	Vanaf wanneer geeft u mantelzorg aan uw partner / vader / moeder / schoonvader / schoonmoeder / zoon / dochter / schoonzoon / schoondochter / broer / zus / vriend/kennis / buurman/buurvrouw / iemand anders? (maand)	care_start_adu_q_1_a1-a14	INFCARE3A1-14	AUTQ	18+
Since when do you give informal care to [this person]? (year)	Vanaf wanneer geeft u mantelzorg aan [deze persoon]? (jaar)	care_start_adu_q_1_b1-b14	INFCARE3B1-14	AUTQ	18+
can you indicate with a number between '0 to 100' how much of a burden it is to provide informal care to [this person]? The closer to '0 ', the less of a burden you think it is.	kunt u aangeven met een getal tussen '0 tot 100' hoe zwaar u het vindt om mantelzorg aan [deze persoon] te geven? 0 geeft aan dat u het geven van mantelzorg totaal niet zwaar vindt	care_burden_adu_q_1_a1-a14	INFCARE5A-N	AUTQ	18+
was there a period in which you could not do your normal duties (e.g. work, school, household) because you were providing care for [this person]?	hebt u een periode niet uw gebruikelijke taken (bijv. werk, school, huishouden) kunnen doen doordat u voor [deze persoon] zorgde?	care_burden_adu_q_1_b1-b14	AUTISME14A-N	AUTQ	18+
how much time do you need on average to care for [this person]?	hoeveel tijd hebt u gemiddeld nodig om voor [deze persoon] te zorgen?	care_time_adu_q_a1-a14	AUTISME15A-N	AUTQ	18+
(Beginning) dementia/memory problems / what is the cause of the need for help of [this person]?	(Beginnende) dementie/geheugenproblemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]?	recipient_cause_adu_q_1_a1-a14	INFCARE14A1-A14	AUTQ	18+
Mental problems / what is the cause of the need for help of [this person]?	Psychische problemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]?	recipient_cause_adu_q_1_b1-b14	INFCARE14B1-B14	AUTQ	18+
Physical problems / what is the cause of the need for help of [this person]?	Lichamelijke problemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]?	recipient_cause_adu_q_1_c1-c14	INFCARE14C1-C14	AUTQ	18+
Mental disability / what is the cause of the need for help of [this person]?	Verstandelijke handicap / Wat is de oorzaak van de hulpbehoefte van [deze persoon]?	recipient_cause_adu_q_1_d1-d14	INFCARE14D1-D14	AUTQ	18+
Behavioural problems / what is the cause of the need for help of [this person]?	Gedragsproblemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]?	recipient_cause_adu_q_1_e1-e14	INFCARE14E1-E14	AUTQ	18+
Other / what is the cause of the need for help of [this person]?	Anders / Wat is de oorzaak van de hulpbehoefte van [deze persoon]?	recipient_cause_adu_q_1_f1-f14	INFCARE14F1-F14	AUTQ	18+
Diabetes / which disease or disorder was the cause of the care requirements of [this person]?	Suikerziekte / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_a1-a14	INFCARE15A1-A14	AUTQ	18+
(Effects of) a stroke, cerebral hemorrhage, cerebral infarction, TIA / which disease or disorder was the cause of the care requirements of [this person]?	(Gevolgen van) beroerte, hersenbloeding, herseninfarct of TIA / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_b1-b14	INFCARE15B1-B14	AUTQ	18+
Heart failure / which disease or disorder was the cause of the care requirements of [this person]?	Hartfalen / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_c1-c14	INFCARE15C1-C14	AUTQ	18+
Cancer (malignancy) / which disease or disorder was the cause of the care requirements of [this person]?	Een vorm van kanker (kwaadaardige aandoening) / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_d1-d14	INFCARE15D1-D14	AUTQ	18+
Asthma, chronic bronchitis, lung emphysema, COPD / which disease or disorder was the cause of the care requirements of [this person]?	Astma, chronische bronchitis, longemfyseem of CARA/COPD / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_e1-e14	INFCARE15E1-E14	AUTQ	18+
Depression / which disease or disorder was the cause of the care requirements of [this person]?	Depressie / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_m1-m14	INFCARE15M1-M14	AUTQ	18+
Anxiety or panic disorder / which disease or disorder was the cause of the care requirements of [this person]?	Angst-/paniekstoornis / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_n1-n14	INFCARE15N1-N14	AUTQ	18+
Dementia / which disease or disorder was the cause of the care requirements of [this person]?	Dementie / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_o1-o14	INFCARE15O1-O14	AUTQ	18+
Kidney disease / which disease or disorder was the cause of the care requirements of [this person]?	Nierziekte / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_u1-u14	INFCARE15U1-U14	AUTQ	18+
Autism/Autism spectrum disorder / which disease or disorder was the cause of the care requirements of [this person]?	Autisme/autisme spectrum stoornis / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_v1-v14	INFCARE15V1-V14	AUTQ	18+
Rheumatism/joint problems / which disease or disorder was the cause of the care requirements of [this person]?	Reuma/gewrichtsklachten / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_w1-w14	INFCARE15W1-W14	AUTQ	18+
Other / which disease or disorder was the cause of the care requirements of [this person]?	Anders / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt?	recipient_disorder_adu_q_1_t1-t14	INFCARE15T1-T14	AUTQ	18+

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