informal_care
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| * [[AUTQ]], a questionnaire focusing on autism, including the informal care for autistic persons. | * [[AUTQ]], a questionnaire focusing on autism, including the informal care for autistic persons. | ||
| - | | **Questions | + | ===== Variables ===== |
| - | | On average how many hours per week do you spend caring for one or more family members? | + | === General questions=== |
| - | | Not applicable, I do not provide care for family members, friends or neighbors. | + | | **Label English** |
| - | | Do you give informal care? | Geeft u mantelzorg? | + | | On average how many hours per week do you spend caring for one or more family members? |
| - | | Who do you give informal care? Partner / Father / Mother / Father-in-law / Mother-in-law / Son / Daughter / Son-in-law / Daughter-in-law / Brother / Sister / Friend or acquaintance / Neighbour / Someone else | Ja, ik geef deze zorg aan mijn: Partner / Vader / Moeder / Schoonvader / Schoonmoeder / Zoon / Dochter / Schoonzoon / Schoondochter / Broer / Zus / Vriend of kennis / Buurman of -vrouw / Iemand anders | + | | Not applicable, I do not provide care for family members, friends or neighbors. |
| - | | If you give informal care, on average how many hours per week do you help with... | + | | Do you give informal care? | Geeft u mantelzorg? |
| - | | household tasks (such as preparing food and drinks, cleaning the house, washing, ironing and sewing clothing, grocery shopping or small chores around the house or garden etc.)? | + | | Yes, I give informal care to my: Partner / Father / Mother / Father-in-law / Mother-in-law / Son / Daughter / Son-in-law / Daughter-in-law / Brother / Sister / Friend or acquaintance / Neighbour / Someone else | Ja, ik geef deze zorg aan mijn: Partner / Vader / Moeder / Schoonvader / Schoonmoeder / Zoon / Dochter / Schoonzoon / Schoondochter / Broer / Zus / Vriend of kennis / Buurman of -vrouw / Iemand anders |
| - | | personal care (such as getting dressed and undressed, bathing, combing, shaving, going to the toilet, moving around indoors, eating, drinking or administering medication etc.)? | + | | Specification of someone else: / yes, i give informal care to my: | Specificatie iemand anders / ja, ik geef deze (mantel)zorg aan mijn: | recipient_informalcare_adu_q_1_n1 |
| - | | other activities (such as moving around outdoors, making day trips and visiting family or friends, having contact with health care professionals - for example accompanying visits to the doctor; the hospital; a therapy, arranging help, medical devices and/or home adjustments, | + | | If you give informal care, on average how many hours per week do you help with... |
| - | | Since when do you give informal care? (month/ | + | | household tasks (such as preparing food and drinks, cleaning the house, washing, ironing and sewing clothing, grocery shopping or small chores around the house or garden etc.)? |
| - | | Since when do you give informal care to your partner / father / mother / father-in-law / mother-in-law /son / daughter / son-in-law / daughter-in-law / brother / sister / friend/ | + | | personal care (such as getting dressed and undressed, bathing, combing, shaving, going to the toilet, moving around indoors, eating, drinking or administering medication etc.)? |
| - | | Since when do you give informal care to [this person]? (year) | + | | other activities (such as moving around outdoors, making day trips and visiting family or friends, having contact with health care professionals - for example accompanying visits to the doctor; the hospital; a therapy, arranging help, medical devices and/or home adjustments, |
| - | | Do you live at the same address as the person to whom you give informal care? If you give informal care to more than one person, do you live at the same address as one of these people? | + | | Since when do you give informal care? (month/ |
| - | | Can you indicate with a number between '0 to 100' how heavy you find it to give informal care? The closer to '0 ', the less heavy you think giving informal care is. And the closer to ' | + | | Do you live at the same address as the person to whom you give informal care? If you give informal care to more than one person, do you live at the same address as one of these people? |
| - | | can you indicate with a number between '0 to 100' how much of a burden it is to provide informal care to [this person]? The closer to '0 ', the less of a burden you think it is. | kunt u aangeven met een getal tussen '0 tot 100' hoe zwaar u het vindt om mantelzorg aan [deze persoon] te geven? 0 geeft aan dat u het geven van mantelzorg totaal niet zwaar vindt | care_burden_adu_q_1_a1-a14 | + | | Can you indicate with a number between '0 to 100' how heavy you find it to give informal care? The closer to '0 ', the less heavy you think giving informal care is. And the closer to ' |
| - | | Can you indicate with a number between '0 to 100' how much satisfaction you get from giving informal care? The closer to ' | + | | can you indicate with a number between '0 to 100' how much of a burden it is to provide informal care to [this person]? The closer to '0 ', the less of a burden you think it is. | kunt u aangeven met een getal tussen '0 tot 100' hoe zwaar u het vindt om mantelzorg aan [deze persoon] te geven? 0 geeft aan dat u het geven van mantelzorg totaal niet zwaar vindt | care_burden_adu_q_1_a1-a14 |
| - | | You have just answered some questions about your position as an informal caregiver. Informal care will become increasingly important in the future. May we approach you in the future to ask you some additional questions about your position as an informal caregiver? | + | | Can you indicate with a number between '0 to 100' how much satisfaction you get from giving informal care? The closer to ' |
| - | | Do you give unpaid help/care to one or more people who are unable to do this for reasons other than long term limitations and/or health problems? For example because they prefer to spend time on other things or because they are not good at something; think of babysitting grandchildren, | + | | You have just answered some questions about your position as an informal caregiver. Informal care will become increasingly important in the future. May we approach you in the future to ask you some additional questions about your position as an informal caregiver? |
| - | | On average how many hours per week do you spend on giving this type of unpaid help? | Ja, totaal xxx uren gemiddeld per week | care_presence_adu_q_1_a | + | | Do you give unpaid help/care to one or more people who are unable to do this for reasons other than long term limitations and/or health problems? For example because they prefer to spend time on other things or because they are not good at something; think of babysitting grandchildren, |
| - | | I do not give informal care at the moment | + | | On average how many hours per week do you spend on giving this type of unpaid help? | Ja, totaal xxx uren gemiddeld per week | care_presence_adu_q_1_a |
| - | | Do you provide (informal) care to someone close to you with a health problem in your private life? | Verleent u in uw privé-situatie (mantel)zorg aan een naaste met een gezondheidsprobleem? | + | | Do you provide (informal) care to someone close to you with a health problem in your private life? | Verleent u in uw privé-situatie (mantel)zorg aan een naaste met een gezondheidsprobleem? |
| - | | How many hours per week do you provide (informal) care? | Hoeveel uren (mantel)zorg verleent u per week? | care_presence_adu_q_2_a | + | | How many hours per week do you provide (informal) care? | Hoeveel uren (mantel)zorg verleent u per week? | care_presence_adu_q_2_a |
| - | | **Questions | + | === Variables in ACTQ=== |
| - | | can you indicate with a number between ' | + | | **Label English** |
| - | | was there a period in which you could not do your normal duties (e.g. work, school, household) because you were providing care for [this person]? | + | | do you have grandchildren? |
| - | | how much time do you need on average to care for [this person]? | + | | have you cared for your grandchildren in the past 12 months? |
| - | | (Beginning) dementia/ | + | | how often have you cared for your grandchild(ren) in the pas 12 months? |
| - | | Mental problems / what is the cause of the need for help of [this person]? | + | | (almost) daily | (vrijwel) dagelijks |
| - | | Physical problems / what is the cause of the need for help of [this person]? | + | | 2 to 3 times per week | 2 tot 3 keer per week | grandchildren_care_adu_q_1_b |
| - | | Mental disability / what is the cause of the need for help of [this person]? | + | | 1 time per week | 1 keer per week | grandchildren_care_adu_q_1_c |
| - | | Behavioural problems / what is the cause of the need for help of [this person]? | + | | 1 time per 2 weeks | 1 keer per twee weken | grandchildren_care_adu_q_1_d |
| - | | Other / what is the cause of the need for help of [this person]? | + | | 1 time per month | 1 keer per maand | grandchildren_care_adu_q_1_e |
| - | | Diabetes / which disease or disorder was the cause of the care requirements of [this person]? | + | | 1 time per 2 months |
| - | | (Effects of) a stroke, cerebral hemorrhage, cerebral infarction, TIA / which disease or disorder was the cause of the care requirements of [this person]? | + | | 1 time per 3 months |
| - | | Heart failure / which disease or disorder was the cause of the care requirements of [this person]? | + | | 1 time per half year | 1 keer per half jaar | grandchildren_care_adu_q_1_h |
| - | | Cancer (malignancy) / which disease or disorder was the cause of the care requirements of [this person]? | + | | 1 time per nine months |
| - | | Asthma, chronic bronchitis, lung emphysema, COPD / which disease or disorder was the cause of the care requirements of [this person]? | + | | 1 time per year | 1 keer per jaar | grandchildren_care_adu_q_1_j |
| - | | Depression / which disease or disorder was the cause of the care requirements of [this person]? | + | | [xx] hours / on average, |
| - | | Anxiety or panic disorder / which disease or disorder was the cause of the care requirements of [this person]? | + | | (almost) daily | (vrijwel) dagelijks |
| - | | Dementia / which disease or disorder was the cause of the care requirements of [this person]? | + | | 2 to 3 times per week | 2 tot 3 keer per week | grandchildren_care_adu_q_1_b1 |
| - | | Kidney disease / which disease or disorder was the cause of the care requirements of [this person]? | + | | 1 time per week | 1 keer per week | grandchildren_care_adu_q_1_c1 |
| - | | Autism/ | + | | 1 time per 2 weeks | 1 keer per twee weken | grandchildren_care_adu_q_1_d1 |
| - | | Rheumatism/ | + | | 1 time per month | 1 keer per maand | grandchildren_care_adu_q_1_e1 |
| - | | Other / which disease or disorder was the cause of the care requirements of [this person]? | + | | 1 time per 2 months |
| + | | 1 time per 3 months | ||
| + | | 1 time per half year | 1 keer per half jaar | grandchildren_care_adu_q_1_h1 | ||
| + | | 1 time per nine months | ||
| + | | 1 time per year | 1 keer per jaar | grandchildren_care_adu_q_1_j1 | ||
| + | |||
| + | === Variables in AUTQ=== | ||
| + | | **Label English** | ||
| + | | Since when do you give informal care to your partner / father / mother / father-in-law / mother-in-law /son / daughter / son-in-law / daughter-in-law / brother / sister / friend/ | ||
| + | | Since when do you give informal care to [this person]? | ||
| + | | was there a period in which you could not do your normal duties (e.g. work, school, household) because you were providing care for [this person]? | ||
| + | | how much time do you need on average to care for [this person]? | ||
| + | | (Beginning) dementia/ | ||
| + | | Mental problems / what is the cause of the need for help of [this person]? | ||
| + | | Physical problems / what is the cause of the need for help of [this person]? | ||
| + | | Mental disability / what is the cause of the need for help of [this person]? | ||
| + | | Behavioural problems / what is the cause of the need for help of [this person]? | ||
| + | | Other / what is the cause of the need for help of [this person]? | ||
| + | | Diabetes / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | (Effects of) a stroke, cerebral hemorrhage, cerebral infarction, TIA / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Heart failure / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Cancer (malignancy) / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Asthma, chronic bronchitis, lung emphysema, COPD / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Depression / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Anxiety or panic disorder / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Dementia / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Kidney disease / which disease or disorder was the cause of the care requirements of [this person]? | ||
| + | | Autism/ | ||
| + | | Rheumatism/ | ||
| + | | Other / which disease or disorder was the cause of the care requirements of [this person]? | ||
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