Differences

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--- autq [2023/03/08 11:23] – [Protocol & response] simone
+++ autq [2025/02/05 13:49] (current) – external edit 127.0.0.1
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 The Autistic Traits questionnaire is an [[additional assessments|additional assessment]] among adult [[cohort|Lifelines]] participants.\\
 The digital questionnaire was developed at the initiative of the [[https://www.autismresearchcentre.com|Autism Research Center]] of Cambridge University (UK), in collaboration with the [[https://www.sarr.nl|Sarr (Parnassia group)]] in Rotterdam (NL).\\
-The questionnaire consists of the [[autism spectrum (AQ-10)|10-item]] adult version of the [[https://en.wikipedia.org/wiki/Autism-spectrum_quotient|Autism Spectrum Quotient]], plus some additional questions about participants' experience with [[informal care]] in general, and informal care of [[https://en.wikipedia.org/wiki/Autism_spectrum|autism spectrum disorder (ASD)]] patients in particular.
+The questionnaire consists of the [[autism spectrum (AQ-10)|10-item]] adult version of the [[https://en.wikipedia.org/wiki/Autism-spectrum_quotient|Autism Spectrum Quotient]] (([[https://doi.org/10.1023/a:1005653411471|Baron-Cohen S, Wheelwright S, Skinner R, Martin J, Clubley E. The autism-spectrum quotient (AQ): evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. J Autism Dev Disord. 2001 Feb;31(1):5-17. doi: 10.1023/a:1005653411471. Erratum in: J Autism Dev Disord 2001 Dec;31(6):603. PMID: 11439754]])), plus some additional questions about participants' experience with [[informal care]] in general, and informal care of [[https://en.wikipedia.org/wiki/Autism_spectrum|autism spectrum disorder (ASD)]] patients in particular.
+The Autistic Traits variables are available for use for all researchers and can be requested through the catalogue.
+When the AUTQ data has been used in your research, you will have to include the following reference:
+  * [[https://doi.org/10.1038/s41467-020-17794-1|Warrier, V., Greenberg, D.M., Weir, E. et al. Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals. Nat Commun 11, 3959 (2020). https://doi.org/10.1038/s41467-020-17794-1]]
+Specifically, when the AQ has been used in your research, you will have to include the following reference:
+  * [[https://10.1023/a:1005653411471|Baron-Cohen S, Wheelwright S, Skinner R, Martin J, Clubley E. The autism-spectrum quotient (AQ): evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. J Autism Dev Disord. 2001 Feb;31(1):5-17. doi: 10.1023/a:1005653411471. Erratum in: J Autism Dev Disord 2001 Dec;31(6):603. PMID: 11439754.]]
 ===== Protocol & response =====
-The digital questionnaire was sent out between september and december 2019.\\
+The digital questionnaire was sent out between july and november 2019.\\
 ~110,000 adult Lifelines participants received the questionnaire, of which ~39,000 participants (35%) responded.
@@ Line 22: / Line 30: @@
 In addition, non-binary [[sex & gender|gender]] was assessed.\\
 Furthermore, some questions were asked about [[informal care]].
+===== Publications =====
+The following publications included results from AUTQ:
+  * Warrier, V. et al (2020). Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals. Nat Commun 11, 3959
+  * Warreman E.B. et al. (2023) [[https://journals.sagepub.com/doi/10.1177/13623613231155324|Psychological, behavioural and biological factors associated with gastrointestinal symptoms in autistic adults and adults with autistic traits]]. Autism 27(7):2173-2186
+  * Warreman E.B. et al. (2023) [[https://www.sciencedirect.com/science/article/pii/S2589537023003887?via%3Dihub|Psychological, behavioural, and physical aspects of caregiver strain in autism-caregivers: a cohort study]]. EClinicalMedicine 64:102211.