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chronic_fatigue_syndrome_cdc

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Chronic Fatigue Syndrome (CDC)

The Centers for Disease Control and Prevention (CDC) symptom inventory for chronic fatigue syndrome (CFS or ME) is aimed to assess whether a person meets the CDC diagnostic criteria for (CFS)1) (section: diseases & symptoms).
Note that Lifelines also assesses (chronic) fatigue using the CIS and PROMIS instruments plus some general questions.

Background

The CDC symptom survey was developed in English and translated in Dutch 2). The CDC symptom survey as used in Lifelines assesses 8 symptoms that are part of the diagnostic criteria for CSF, plus a question regarding depressive feelings in the last 6 months to increase the diagnostic value. To assess fatigue, the core symptom of CFS, an additional question was asked in conjuction to the CDC (see here.
Recent studies indicate that self-report (i.e. asking a person whether he/she suffers from CFS/ME, which was repeatedly done in Lifelines) misses 90% of the CFS diagnoses3). The CDC symptom survey improves the identification of participants that meet the diagnostic criteria for CFS/ME by asking for the presence of individual symptoms rather than the disease itself.

Validation

The validation of the CDC symptom survey is described here4)

Variables

Questions English Questions Dutch Variable Assessment Age
Forgetfulness / How often did you have the complaints listed below in the past 6 months? Vergeetachtigheid / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC1 2A NEXT 18+
Forgetfulness / Have you had these complaints for more than or less than 6 months? Vergeetachtigheid / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC1A 2A NEXT 18+
Problems concentrating / How often did you have the complaints listed below in the past 6 months? Concentratieproblemen / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC2 2A NEXT 18+
Problems concentrating / Have you had these complaints for more than or less than 6 months? Concentratieproblemen / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC2A 2A NEXT 18+
Sore throat / How often did you have the complaints listed below in the past 6 months? Keelpijn / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC3 2A NEXT 18+
Sore throat / Have you had these complaints for more than or less than 6 months? Keelpijn / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC3A 2A NEXT 18+
Tender neck or axillary nodes / How often did you have the complaints listed below in the past 6 months? Gevoelige hals- of okselklieren / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC4 2A NEXT 18+
Tender neck or axillary nodes / Have you had these complaints for more than or less than 6 months? Gevoelige hals- of okselklieren / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC4A 2A NEXT 18+
Sore muscles / How often did you have the complaints listed below in the past 6 months? Spierpijn / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC5 2A NEXT 18+
Sore muscles / Have you had these complaints for more than or less than 6 months? Spierpijn / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC5A 2A NEXT 18+
Painful joints / How often did you have the complaints listed below in the past 6 months? Pijnlijke gewrichten / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC6 2A NEXT 18+
Painful joints / Have you had these complaints for more than or less than 6 months? Pijnlijke gewrichten / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC6A 2A NEXT 18+
Headache / How often did you have the complaints listed below in the past 6 months? Hoofdpijn / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC7 2A NEXT 18+
Headache / Have you had these complaints for more than or less than 6 months? Hoofdpijn / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC7A 2A NEXT 18+
Waking up not feeling rested / How often did you have the complaints listed below in the past 6 months? Niet uitgerust wakker worden / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC8 2A NEXT 18+
Waking up not feeling rested / Have you had these complaints for more than or less than 6 months? Niet uitgerust wakker worden / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC8A 2A NEXT 18+
Worsening of complaints after physical activity / How often did you have the complaints listed below in the past 6 months? Toename van klachten na lichamelijke inspanning / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC9 2A NEXT 18+
Worsening of complaints after physical activity / Have you had these complaints for more than or less than 6 months? Toename van klachten na lichamelijke inspanning / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC9A 2A NEXT 18+
Depressive feelings / How often did you have the complaints listed below in the past 6 months? Depressieve gevoelens / Hoe vaak hebt u de afgelopen 6 maanden last gehad van onderstaande klachten? CDC10 2A NEXT 18+
Depressed feelings / Have you had these complaints for more than or less than 6 months? Depressieve gevoelens / Hebt u korter of langer dan 6 maanden last van deze klachten? CDC10A 2A NEXT 18+
1)
van't Leven M et al. (2010). Fatigue and chronic fatigue syndrome-like complaints in the general population. European Journal of Public Health 20: 251-257
2)
Ruud CW Vermeulen (2006) Translation and validation of the Dutch language version of the CDC Symptom Inventory for assessment of Chronic Fatigue Syndrome (CFS). Population Health Metrics 4(12)
3)
Warren JW, Clauw DJ (2012). Functional somatic syndromes: sensitivities and specificities of self-reports of physician diagnosis. Psychosomatic Medicine 74(9):891-895
4)
Wagner et al. (2005) Psychometric properties of the CDC Symptom Inventory for assessment of Chronic Fatigue Syndrome. Population Health Metrics 3(8)
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