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chronic_fatigue_syndrome_cdc

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Chronic Fatigue Syndrome (CDC)

The Centers for Disease Control and Prevention (CDC) symptom inventory for chronic fatigue syndrome (CFS or ME) is aimed to assess whether a person meets the CDC diagnostic criteria for (CFS)1) (section: diseases & symptoms.
Note that Lifelines also assesses (chronic) fatigue using the CIS and PROMIS instruments plus some general questions.

Background

The CDC symptom survey assesses the 8 symptoms that are part of the diagnostic criteria for CSF, plus a single question on fatigue duration and a single yes/no question on depression in the last 6 months to increase the diagnostic value.
The presence of CFS is currently only questioned by self-report, but recent studies indicate that this methodology misses 90% of the CFS diagnoses 2). Using the CDC symtom survey, participants may be diagnosed with CFS/ME in the dataset.

Variables

Questions English Questions Dutch Variable Assessment Age
Please indicate whether the parts of the body listed below were painful and/or tender in the past 7 days: Geef aan of de onderstaande lichaamsdelen pijnlijk en/of gevoelig waren in de afgelopen 7 dagen:
Left shoulder Linker schouder WPI1 2A NEXT 18+
Right shoulder Rechter schouder WPI2 2A NEXT 18+
Left hip Linker heup WPI3 2A NEXT 18+
Right hip Rechter heup WPI4 2A NEXT 18+
Left upper arm Linker bovenarm WPI5 2A NEXT 18+
Right upper arm Rechter bovenarm WPI6 2A NEXT 18+
Left lower arm Linker onderarm WPI7 2A NEXT 18+
Right lower arm Rechter onderarm WPI8 2A NEXT 18+
Left upper leg Linker bovenbeen WPI9 2A NEXT 18+
Right upper leg Rechter bovenbeen WPI10 2A NEXT 18+
Left lower leg Linker onderbeen WPI11 2A NEXT 18+
Right lower leg Rechter onderbeen WPI12 2A NEXT 18+
Left side of jaw Linker kaak WPI13 2A NEXT 18+
Right side of jaw Rechter kaak WPI14 2A NEXT 18+
Chest Borstkas WPI15 2A NEXT 18+
Abdomen Buik WPI16 2A NEXT 18+
Upper back Bovenrug WPI17 2A NEXT 18+
Lower back Onderrug WPI18 2A NEXT 18+
Neck Nek WPI19 2A NEXT 18+
1)
van't Leven M et al. (2010). Fatigue and chronic fatigue syndrome-like complaints in the general population. European Journal of Public Health 20: 251-257
2)
Warren JW, Clauw DJ (2012). Functional somatic syndromes: sensitivities and specificities of self-reports of physician diagnosis. Psychosomatic Medicine 74(9):891-895
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