infq
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infq [2022/01/11 16:05] – [Table] simone | infq [2025/02/05 13:49] (current) – external edit 127.0.0.1 | ||
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* informal care and work | * informal care and work | ||
- | The Informal Care questionnaire is available for use for all researchers and can be requested through the catalogue. | + | The Informal Care questionnaire is available for use for all researchers and can be requested through the catalogue. Note that some additional questions on [[informal care]] were asked in other general and additional assessments. |
- | Note that some additional questions on [[informal care]] were asked in other general and additional assessments. | + | |
===== Subcohort ===== | ===== Subcohort ===== | ||
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===== Publications using INFQ data ===== | ===== Publications using INFQ data ===== | ||
- | * Oldenkamp, M. et al. (2016) Survey nonresponse among informal caregivers: effects on the presence and magnitude of associations with caregiver burden and satisfaction. BMC Public Health 16(1): 480. | + | * Oldenkamp, M. et al. (2016) |
- | * Oldenkamp, M. et al. (2017). The Lifelines Cohort Study: a data source available for studying informal caregivers’ experiences and the outcomes of informal caregiving. Journal of Compassionate Health Care, 4:6. | + | * Oldenkamp, M. et al. (2017). |
- | * Oldenkamp M. et al. (2018) Combining informal care and paid work: The use of work arrangements by working adult-child caregivers in the Netherlands. Health and Social Care in the Community 26(1): e122-e131 | + | * Oldenkamp M. et al. (2018) |
===== Variables ===== | ===== Variables ===== | ||
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It also contained the [[Quality of Life (EQ5D)]] instrument.\\ | It also contained the [[Quality of Life (EQ5D)]] instrument.\\ | ||
In addition, the following variables were collected in the Informal Care Questionnaire on the subtopic **General information on caregiving situation** (**Algemene vragen over uw mantelzorgsituatie**): | In addition, the following variables were collected in the Informal Care Questionnaire on the subtopic **General information on caregiving situation** (**Algemene vragen over uw mantelzorgsituatie**): | ||
- | | **Questions English** | + | | **Questions English** |
- | | The person who receives most of my informal care, in terms of time, is my ... | De persoon aan wie ik qua tijd de meeste mantelzorg geef is mijn... | + | | I do not give informal care at the moment |
- | | Sex of the person close to you | Wat is het geslacht van uw naaste? | + | | The person who receives most of my informal care, in terms of time, is my ... | De persoon aan wie ik qua tijd de meeste mantelzorg geef is mijn... |
- | | Birth month of the person close to you | Wat is de geboortemaand van uw naaste? | + | | Sex of the person close to you | Wat is het geslacht van uw naaste? |
- | | Birth year of the person close to you | Wat is het geboortejaar van uw naaste? | + | | Birth month of the person close to you | Wat is de geboortemaand van uw naaste? |
- | | What is the living situation of the person close to you? | Wat is de woonsituatie van uw naaste? | + | | Birth year of the person close to you | Wat is het geboortejaar van uw naaste? |
+ | | What is the living situation of the person close to you? | Wat is de woonsituatie van uw naaste? | ||
+ | | Do you live at the same address as the person close to you? | Woont u op hetzelfde adres als uw naaste? | ||
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The following variables were collected in the Informal Care Questionnaire on the subtopic **Combining informal care and work** (**Het combineren van mantelzorg en werk**): | The following variables were collected in the Informal Care Questionnaire on the subtopic **Combining informal care and work** (**Het combineren van mantelzorg en werk**): | ||
- | | **Questions English** | + | | **Questions English** |
- | | Did you have paid work at the moment you started to give informal care? | + | | Did you have paid work at the moment you started to give informal care? |
- | | Number of hours paid work (at the moment you started to give informal care) | + | | Number of hours paid work (at the moment you started to give informal care) |
- | | Do you have paid work at this moment? | + | | Do you have paid work at this moment? |
- | | Number of hours paid work (at this moment) | + | | Number of hours paid work (at this moment) |
- | | Did you reduce your working hours since you started to give informal care? | Bent u sinds u mantelzorg bent gaan geven minder gaan werken? | + | | Did you reduce your working hours since you started to give informal care? | Bent u sinds u mantelzorg bent gaan geven minder gaan werken? |
- | | Since when did you start to work less? Month / Year | + | | Since when did you start to work less? Month / Year |
- | | How many hours did you work less? (per week) | Hoeveel uren per week bent u minder gaan werken? | + | | How many hours did you work less? (per week) | Hoeveel uren per week bent u minder gaan werken? |
- | | Did you reduce your working hours because of the informal care? | + | | Did you reduce your working hours because of the informal care? |
- | | To what extent are you able to combine your informal care with your work? | + | | To what extent are you able to combine your informal care with your work? |
- | | Do you have a work contract or do you work independent or freelance (with or without personnel)? | + | | Do you have a work contract or do you work independent or freelance (with or without personnel)? |
- | | Since you started to give informal care, have you made use of the following work-related options and facilities to get time and opportunity for your informal care tasks? Take casual leave / Take emergency leave / Take long-term care leave / Take short-term care leave / Take unpaid leave / Take special or extraordinary leave / Take sick leave / Other type of work-related options | + | | Since you started to give informal care, have you made use of the following work-related options and facilities to get time and opportunity for your informal care tasks? Take casual leave / Take emergency leave / Take long-term care leave / Take short-term care leave / Take unpaid leave / Take special or extraordinary leave / Take sick leave / Other type of work-related options |
- | | | + | | Have you made any of the following individual agreements with your employer to get time and opportunity to give informal care? Work from home more often / Flexible working hours / Accumulate overtime and use it in case of calamities / (Temporarily) a different, lighter set of work tasks / Postponement of certain work tasks / Work less but on fixed days / Agreement about a longer period of leave / Being allowed to declare informal care hours / (Retraining for) a different work role / Adjustment of your contract (working reduced hours) / (Temporarily) stop working completely / Weekly contact with manager / Other agreements |
- | | | + | | To what extent are you content with the way your employer handles your situation as an informal caregiver? |
- | | | + | | You have indicated that you are an independent worker/ |
- | | | + | | Since you started giving informal care, have you stopped working because of the informal care? |
- | | | + | | Since when did you stop working? Month / Year | Sinds wanneer bent u gestopt met werken? |
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