cancer
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| ====== Cancer ====== | ====== Cancer ====== | ||
| - | [[start|Lifelines]] participants were asked the following questions about their experiences with cancer ([[sections|section]]: [[Diseases & symptoms]]): | + | [[start|Lifelines]] participants were asked the following questions about their experiences with cancer ([[sections|section]]: [[Diseases & symptoms]]).\\ |
| + | Note that it is possible to link Lifelines data to PALGA and IKNL cancer registries.\\ | ||
| + | Some statistics on the self-reported prevalence and incidence of cancer in the Lifelines [[cohort]] can be found [[cancer statistics|here]]. | ||
| - | | **Questions English** | **Questions Dutch** | **Variable** | **Assessment** | **Age** | | + | | **Questions English** | **Questions Dutch** | **Code** | **Variable** | **Assessment** | **Age** | |
| - | | Do you have cancer or have you had cancer? | Hebt u kanker of hebt u kanker gehad? | HEALTH16A | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | | + | | Do you have cancer or have you had cancer? | Hebt u kanker of hebt u kanker gehad? | cancer_lifetime_adu_q_1 | HEALTH16A | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | |
| - | | If you have (had) cancer, what type of cancer? | Wat voor kanker? | HEALTH16B | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | | + | | What type of cancer? | Wat voor kanker? | cancer_type_adu_q_1 | HEALTH16B | [[1A Questionnaire 1|1A]] [[NEXT]] | 18+ | |
| - | | If you have (had) cancer, how old were you when you got cancer? | Hoe oud was u toen u voor het eerst kanker kreeg? | HEALTH16C | [[1A Questionnaire 1|1A]] | 18+ | | + | | How old were you when you got cancer? | Hoe oud was u toen u voor het eerst kanker kreeg? | cancer_startage_adu_q_1 | HEALTH16C | [[1A Questionnaire 1|1A]] | 18+ | |
| - | | If you have had cancer, were you cured from cancer? | Bent u genezen verklaard?/ Hebt u kanker of hebt u kanker gehad? | HEALTH16D | [[1A Questionnaire 1|1A]] | 18+ | | + | | Were you cured from cancer? / Do you have cancer or have you had cancer? | Bent u genezen verklaard?/ Hebt u kanker of hebt u kanker gehad? | cancer_cured_adu_q_1 | HEALTH16D | [[1A Questionnaire 1|1A]] [[proxy]] | 18+ | |
| - | | Since what year do you have cancer? | Sinds welk jaartal kanker | HEALTH_16YR | [[1A Questionnaire 1|1A]] | 18+ | | + | | Cancer / Have you (had) one of the following chronic conditions? | Kanker / Hebt u één van de volgende chronische aandoeningen (gehad)? | cancer_presence_adu_q_2 | HEALTH16A[P] | [[Proxy]] | 18+ | |
| - | | Cancer / Did the health problems listed below start since the last time you filled in the LifeLines questionnaire? | Kanker / Hebt u onderstaande gezondheidsproblemen gekregens sinds de vorige keer dat u een lifelines vragenlijst invulde? | HEALTH100C | [[1B]] [[1C]] [[2A Questionnaire 1|2A]] | 18+ | | + | | Cancer since year: / Have you (had) one of the following chronic conditions? | Kanker sinds jaar: / Hebt u één van de volgende chronische aandoeningen (gehad)? | cancer_presence_adu_q_2_a | HEALTH_16YR | [[Proxy]] | 18+ | |
| - | | Could you indicate which of the following health problems you have (had) since the last time you filled out this questionnaire? Cancer, type: | soort kanker / Hebt u onderstaande gezondheidsproblemen gekregens sinds de vorige keer dat u een lifelines vragenlijst invulde? | HEALTH100C1 | [[1B]] [[1C]] | 18+ | | + | | Type of cancer: / Have you (had) one of the following chronic conditions? | Vorm van kanker: / Hebt u één van de volgende chronische aandoeningen (gehad)? | cancer_type_adu_q_2 | HEALTH16B[P] | [[Proxy]] | 18+ | |
| - | | Colon cancer | Darmkanker | HEALTH100C2 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Did the health problems listed below start since the last time you filled in the LifeLines questionnaire? | Hebt u onderstaande gezondheidsproblemen gekregen sinds de vorige keer dat u een lifelines vragenlijst invulde? | | | | | |
| - | | Lung cancer | Longkanker | HEALTH100C3 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Cancer | Kanker | cancer_followup_adu_q_1 | HEALTH100C | [[1B]] [[1C]] [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Skin cancer | Huidkanker | HEALTH100C4 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Cancer type: | Soort kanker: | cancertype_followup_adu_q_1 | HEALTH100C1 | [[1B]] [[1C]] | 18+ | |
| - | | Brain tumour | Hersentumor | HEALTH100C5 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Colon cancer | Darmkanker | coloncancer_followup_adu_q_1 | HEALTH100C2 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Bone cancer | Botkanker | HEALTH100C6 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Lung cancer | Longkanker | lungcancer_followup_adu_q_1 | HEALTH100C3 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Breast cancer | Borstkanker | HEALTH100C7 | [[1C]] [[2A Questionnaire 1|2A]] | 18+ | | + | | Skin cancer | Huidkanker | skincancer_followup_adu_q_1 | HEALTH100C4 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Prostate cancer | Prostaatkanker | HEALTH100C8 | [[2A Questionnaire 1|2A]] | 18+ | | + | | Brain tumour | Hersentumor | braintumour_followup_adu_q_1 | HEALTH100C5 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| - | | Other type of cancer: | Andere vorm van kanker nl | HEALTH100C9 | [[1C]] [[2A Questionnaire 1|2A]] | 18+ | | + | | Bone cancer | Botkanker | bonecancer_followup_adu_q_1 | HEALTH100C6 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | |
| + | | Breast cancer | Borstkanker | breastcancer_followup_adu_q_1 | HEALTH100C7 | [[1C]] [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | | ||
| + | | Prostate cancer | Prostaatkanker | prostatecancer_followup_adu_q_1 | HEALTH100C8 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | | ||
| + | | Other type of cancer: | Andere vorm van kanker nl: | othercancer_followup_adu_q_1 | HEALTH100C9 | [[2A Questionnaire 1|2A]] [[3A Questionnaire 1|3A]] | 18+ | | ||
| + | | Have you ever received a diagnosis of skin cancer? | Hebt u ooit de diagnose huidkanker gekregen? | skincancer_diagnosis_adu_q_1 | DERM005 | [[3A Questionnaire 1|3A]] | 18+ | | ||
| + | | Do you know which type of skin cancer you had? | Weet u welk type huidkanker u hebt gehad? / Hebt u ooit de diagnose huidkanker gekregen? | skincancer_type_adu_q_1 | DERM005A | [[3A Questionnaire 1|3A]] | 18+ | | ||
| + | | Have you participated in the population screening for cervical cancer (smear test)? | Hebt u deelgenomen aan het bevolkingsonderzoek baarmoederhalskanker (uitstrijkje)? | screentest_cervicalcancer_adu_q_1 | PREV14 | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | What was the result of your last screentest for cervical cancer? | Wat was het resultaat van uw laatste bevolkingsonderzoek naar baarmoederhalskanker? | screentest_cervicalcancer_adu_q_1_a | PREV14A | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | Have you participated in the population screening for breast cancer? | Hebt u deelgenomen aan het bevolkingsonderzoek borstkanker? | screentest_breastcancer_adu_q_1 | PREV15 | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | What was the result of your last screentest for breast cancer? | Wat was het resultaat van het onderzoek naar borstkanker? | screentest_breastcancer_adu_q_1_a | PREV15A | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | Have you participated in the population screening for colon cancer? | Hebt u deelgenomen aan het bevolkingsonderzoek darmkanker? | screentest_coloncancer_adu_q_1 | PREV16 | [[3A Questionnaire 3|3A]] | 18+ | | ||
| + | | What was the result of your last screentest for colon cancer? | Wat was het resultaat van het onderzoek naar darmkanker? | screentest_coloncancer_adu_q_1_a | PREV16A | [[3A Questionnaire 3|3A]] | 18+ | | ||
| - | A large subcohort of adult female participants answered more detailed questions on this topic in the context of an [[additional assessments|additional questionnaire]] on women's reproductive health ([[QROA]]).\\ | ||
| - | | **Questions English** | **Questions Dutch** | **Variable** | **Assessment** | **Age** | | ||
| - | | | Kanker/ Is er ooit één van de volgende aandoeningen bij u vastgesteld of hebt u onderstaande klachten? | HEALTHA10 | [[QROA]] | 18+ | | ||
| - | | | Op welke leeftijd of in welk jaar werd kanker bij u vastgesteld of de klachten ten gevolge van deze ziekte? | HEALTHA10_1/A/B | [[QROA]] | 18+ | | ||
| - | | | Welke behandelingen hebt u gekregen om de kanker te bestrijden? | | | | | ||
| - | | | Chemotherapie | HEALTHA10CH | [[QROA]] | 18+ | | ||
| - | | | Operatie | HEALTHA10OP | [[QROA]] | 18+ | | ||
| - | | | Bestraling | HEALTHA10ST | [[QROA]] | 18+ | | ||
| - | | | Geen van bovenstaande | HEALTHA10GB | [[QROA]] | 18+ | | ||
| - | |||
| - | =====Cancer statistics===== | ||
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| - | These statistics provide the frequency of the occurrence of certain cancers at baseline and during the following three points of measurement (1B, 2A and 2B). As can be seen above, at baseline participants were asked whether they have or had cancer. For the follow-up assessments, participants were asked whether they got cancer since the last questionnaire they received. | ||
| - | |||
| - | |**Type** | **At Baseline**|New cases|New cases|New cases| | ||
| - | | | **1A** |** 1B** | **1C** | **2A** | | ||
| - | | Skin cancer | 2593 | 288 | 199 | 404 | | ||
| - | | Breast cancer | 1344 | 168 | 136 | 171 | | ||
| - | | Endometrial cancer | 674 | 29 | 13 | 21 | | ||
| - | | Ovarian cancer | 98 | 9 | 8 | 4 | | ||
| - | | Vagina and vulva cancer | 11 | 2 | 0 | 0 | | ||
| - | | Lung cancer | 70 | 26 | 13 | 13 | | ||
| - | | Cancer of the head/neck (excl. eye and salivary glands | 93 | 5 | 7 | 6 | | ||
| - | | Eye cancer | 11 | 2 | 0 | 3 | | ||
| - | | Salivary gland cancer | 24 | 0 | 0 | 1 | | ||
| - | | Central nervous system cancer | 75 | 9 | 7 | 18 | | ||
| - | | Prostate cancer | 320 | 79 | 57 | 100 | | ||
| - | | Penile cancer | 5 | 0 | 0 | 2 | | ||
| - | | Testicular cancer | 206 | 10 | 9 | 5 | | ||
| - | | Urinary tract and bladder cancer | 118 | 20 | 18 | 15 | | ||
| - | | Bowel cancer | 384 | 56 | 45 | 67 | | ||
| - | | Esophageal cancer | 20 | 6 | 11 | 8 | | ||
| - | | Stomach cancer | 15 | 3 | 1 | 3 | | ||
| - | | Pancreatic cancer | 10 | 6 | 7 | 2 | | ||
| - | | Gallbladder cancer | 2 | 1 | 2 | 1 | | ||
| - | | Liver cancer | 9 | 1 | 0 | 0 | | ||
| - | | Thyroid cancer | 108 | 6 | 7 | 6 | | ||
| - | | Bone and soft tissue cancer | 90 | 8 | 7 | 14 | | ||
| - | | Kidney cancer | 89 | 14 | 12 | 17 | | ||
| - | | Plasma cancer | 19 | 9 | 3 | 6 | | ||
| - | | Leukemia | 94 | 35 | 4 | 12 | | ||
| - | | Lymph node cancer | 225 | 28 | 14 | 15 | | ||
| - | | Cancer, but location unknown | 92 | 18 | 8 | 3 | | ||
| - | | Pre-stage cancer | 314 | 48 | 28 | 7 | | ||
| - | | Certainly no cancer (only baseline) | 145526 | - | - | - | | ||
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| - | ====Smoking amongst participant with cancer at baseline==== | ||
| - | Below is a table that shows how many participants that have cancer and smoke currently or have smoked in the past month. | ||
| - | |||
| - | |||
| - | |** Smoking frequency amongst cancer patients**|**Participants with cancer** | **Participants without cancer** | | ||
| - | | **Smokers** | 1155 (16,9%) | 30046 (21,6%) | | ||
| - | | **Non-smokers** | 5690 (83,1%) | 109325 (78.4%) | | ||
| - | | **Total** | 6845 (100%) | 139371 (100%) | | ||
cancer.1582727546.txt.gz · Last modified: 2025/02/05 14:49 (external edit)
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