====== Informal care ====== Participants were asked whether they gave unpaid care to someone close (family/friend) because of long term limitations and/or health problems, excluding unpaid care of strangers (i.e. volunteer work) or the care for healthy children ([[sections|section]]: [[lifestyle & environment]]).\\ Note that several subcohorts answered more detailed questions about informal care in the context of the following [[additional assessments]]: * [[INFQ]], a questionnaire focusing on informal care in general * [[ACTQ]], a questionnaire focusing on activities including volunteer work and informal care * [[AUTQ]], a questionnaire focusing on autism, including the informal care for autistic persons. ===== Variables ===== === General questions=== | **Label English** | **Label Dutch** | **Code** | **Variable** | **Assessment** | **Age** | | On average how many hours per week do you spend caring for one or more family members? | Hoeveel uren besteedt u gemiddeld per week aan zorg voor een of meer familieleden (gezinsleden niet meegerekend), vrienden of buren? | care_timespending_adu_q_1 | TIJDSB2 | [[1A Questionnaire 1|1A]] | 18+ | | Not applicable, I do not provide care for family members, friends or neighbors. | Niet van toepassing, ik verleen geen zorg aan familieleden, vrienden of buren | care_timespending_adu_q_1_a | TIJDSB2A | [[1A Questionnaire 1|1A]] | 18+ | | Do you give informal care? | Geeft u mantelzorg? | informalcare_presence_adu_q_1 | INFCARE2 | [[1C]] [[2B]] [[3A Questionnaire 1|3A]] [[3B]] [[AUTQ]] | 18+ | | Yes, I give informal care to my: Partner / Father / Mother / Father-in-law / Mother-in-law / Son / Daughter / Son-in-law / Daughter-in-law / Brother / Sister / Friend or acquaintance / Neighbour / Someone else | Ja, ik geef deze zorg aan mijn: Partner / Vader / Moeder / Schoonvader / Schoonmoeder / Zoon / Dochter / Schoonzoon / Schoondochter / Broer / Zus / Vriend of kennis / Buurman of -vrouw / Iemand anders | recipient_informalcare_adu_q_1_a-n | INFCARE2A-N | [[1C]] [[2B]] [[3A Questionnaire 1|3A]] [[3B]] [[INFQ]] [[AUTQ]] [[3A Questionnaire 1|3A]] | 18+ | | If you give informal care, on average how many hours per week do you help with... | Totaal ... uren gemiddeld per week voor | | | | | | household tasks (such as preparing food and drinks, cleaning the house, washing, ironing and sewing clothing, grocery shopping or small chores around the house or garden etc.)? | huishoudelijke taken (zoals het klaarmaken van eten en drinken, schoonmaken van het huis, wassen, strijken en naaien van kleding, boodschappen doen of kleine klussen in huis of in de tuin etc.) | care_housekeeping_adu_q_1 | INFCARE2O | [[1C]] [[2B]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | | personal care (such as getting dressed and undressed, bathing, combing, shaving, going to the toilet, moving around indoors, eating, drinking or administering medication etc.)? | persoonlijke verzorging (zoals aan- en uitkleden, wassen, kammen, scheren, naar het toilet gaan, verplaatsen binnenshuis, eten, drinken of toedienen medicatie etc.) | care_physical_adu_q_1 | INFCARE2P | [[1C]] [[2B]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | | other activities (such as moving around outdoors, making day trips and visiting family or friends, having contact with health care professionals - for example accompanying visits to the doctor; the hospital; a therapy, arranging help, medical devices and/or home adjustments, arranging financial and administrative matters etc.)? | andere activiteiten (bijv. uitstapjes en bezoekjes, contacten met gezondheidszorg, mee naar ziekenhuis; regelen hulp, regelen van financiële en administratieve zaken etc.) | care_activities_adu_q_1 | INFCARE2Q | [[1C]] [[2B]] [[3A Questionnaire 1|3A]] [[3B]] | 18+ | | Since when do you give informal care? (month/year) | Vanaf wanneer geeft u mantelzorg? (maand/jaar) | care_start_adu_q_1_a/b | INFCARE3A/B | [[1C]] [[2B]] [[INFQ]] | 18+ | | Do you live at the same address as the person to whom you give informal care? If you give informal care to more than one person, do you live at the same address as one of these people? | Woont u op hetzelfde adres als degene aan wie u mantelzorg geeft? Indien u aan meer dan één persoon mantelzorg geeft, woont u op hetzelfde adres als één van deze personen? | care_address_adu_q_1-2 | INFCARE4/__INF | [[1C]] [[2B]] [[INFQ]] | 18+ | | Can you indicate with a number between '0 to 100' how heavy you find it to give informal care? The closer to '0 ', the less heavy you think giving informal care is. And the closer to '100', the heavier you think giving informal care is. | Kunt u aangeven met een getal tussen ’0 tot 100’ hoe zwaar u het vindt om mantelzorg aan uw naaste te geven? | care_burden_adu_q_1 | INFCARE5 | [[1C]] | 18+ | | can you indicate with a number between '0 to 100' how much of a burden it is to provide informal care to [this person]? The closer to '0 ', the less of a burden you think it is. | kunt u aangeven met een getal tussen '0 tot 100' hoe zwaar u het vindt om mantelzorg aan [deze persoon] te geven? 0 geeft aan dat u het geven van mantelzorg totaal niet zwaar vindt | care_burden_adu_q_1_a1-a14 | INFCARE5A-N | [[AUTQ]] | | | Can you indicate with a number between '0 to 100' how much satisfaction you get from giving informal care? The closer to '0', the less satisfaction you get from giving informal care. And the closer to '100', the more satisfaction you get from giving informal care. | Kunt u aangeven met een getal tussen ’0 tot 100’ hoeveel voldoening u haalt uit het verrichten van uw mantelzorgtaken? | care_satisfaction_adu_q_1 | INFCARE6 | [[1C]] | 18+ | | You have just answered some questions about your position as an informal caregiver. Informal care will become increasingly important in the future. May we approach you in the future to ask you some additional questions about your position as an informal caregiver? | U hebt zojuist een aantal vragen over uw positie als mantelzorger beantwoord. Mantelzorg wordt in de toekomst steeds belangrijker. Zouden wij u in de toekomst eventueel mogen benaderen voor wat extra vragen over uw positie als mantelzorger? | care_questionnaire_adu_q_1 | INFCARE7 | [[1C]] | 18+ | | Do you give unpaid help/care to one or more people who are unable to do this for reasons other than long term limitations and/or health problems? For example because they prefer to spend time on other things or because they are not good at something; think of babysitting grandchildren, helping in the household, cooking food, administration, etc. | Geeft u onbetaalde hulp/zorg voor 1 of meer personen die dit om andere redenen dan langdurige beperkingen en/of gezondheidsproblemen niet zelf kunnen doen? Bijvoorbeeld omdat zij graag tijd aan iets anders besteden of minder goed zijn op een bepaald gebied. | care_presence_adu_q_1 | INFCARE8 | [[1C]] | 18+ | | On average how many hours per week do you spend on giving this type of unpaid help? | Ja, totaal xxx uren gemiddeld per week | care_presence_adu_q_1_a | INFCARE8A | [[1C]] | 18+ | | Do you provide (informal) care to someone close to you with a health problem in your private life? | Verleent u in uw privé-situatie (mantel)zorg aan een naaste met een gezondheidsprobleem? | care_presence_adu_q_2 | OVERGANG22A | [[MAWQ]] | 40-67 | | How many hours per week do you provide (informal) care? | Hoeveel uren (mantel)zorg verleent u per week? | care_presence_adu_q_2_a | OVERGANG22B | [[MAWQ]] | 40-67 | === Variables in ACTQ=== | **Label English** | **Label Dutch** | **Code** | **Variable** | **Assessment** | **Age** | | do you have grandchildren? | hebt u kleinkinderen? | grandchildren_current_adu_q_1 | grandch | [[ACTQ]] | 60-80 | | have you cared for your grandchildren in the past 12 months? | hebt u in de afgelopen 12 maanden weleens op uw kleinkinderen gepast? | grandchildren_care_adu_q_1 | grandch1 | [[ACTQ]] | 60-80 | | how often have you cared for your grandchild(ren) in the pas 12 months? | hoe vaak hebt u in de afgelopen 12 maanden op uw kleinkind(eren) gepast? | | | | | | (almost) daily | (vrijwel) dagelijks | grandchildren_care_adu_q_1_a | grandch2a1 | [[ACTQ]] | 60-80 | | 2 to 3 times per week | 2 tot 3 keer per week | grandchildren_care_adu_q_1_b | grandch2a2 | [[ACTQ]] | 60-80 | | 1 time per week | 1 keer per week | grandchildren_care_adu_q_1_c | grandch2a3 | [[ACTQ]] | 60-80 | | 1 time per 2 weeks | 1 keer per twee weken | grandchildren_care_adu_q_1_d | grandch2a4 | [[ACTQ]] | 60-80 | | 1 time per month | 1 keer per maand | grandchildren_care_adu_q_1_e | grandch2a5 | [[ACTQ]] | 60-80 | | 1 time per 2 months | 1 keer per twee maanden | grandchildren_care_adu_q_1_f | grandch2a6 | [[ACTQ]] | 60-80 | | 1 time per 3 months | 1 keer per drie maanden | grandchildren_care_adu_q_1_g | grandch2a7 | [[ACTQ]] | 60-80 | | 1 time per half year | 1 keer per half jaar | grandchildren_care_adu_q_1_h | grandch2a8 | [[ACTQ]] | 60-80 | | 1 time per nine months | 1 keer per negen maanden | grandchildren_care_adu_q_1_i | grandch2a9 | [[ACTQ]] | 60-80 | | 1 time per year | 1 keer per jaar | grandchildren_care_adu_q_1_j | grandch2a10 | [[ACTQ]] | 60-80 | | [xx] hours / on average, how many hours did you spend each time that you cared for your grandchild(ren) in the pas 12 months? | [xx] uur / hoeveel uur besteedde u gemiddeld per keer aan het oppassen op uw kleinkind(eren)? | | | | | | (almost) daily | (vrijwel) dagelijks | grandchildren_care_adu_q_1_a1 | grandch2b1 | [[ACTQ]] | 60-80 | | 2 to 3 times per week | 2 tot 3 keer per week | grandchildren_care_adu_q_1_b1 | grandch2b2 | [[ACTQ]] | 60-80 | | 1 time per week | 1 keer per week | grandchildren_care_adu_q_1_c1 | grandch2b3 | [[ACTQ]] | 60-80 | | 1 time per 2 weeks | 1 keer per twee weken | grandchildren_care_adu_q_1_d1 | grandch2b4 | [[ACTQ]] | 60-80 | | 1 time per month | 1 keer per maand | grandchildren_care_adu_q_1_e1 | grandch2b5 | [[ACTQ]] | 60-80 | | 1 time per 2 months | 1 keer per twee maanden | grandchildren_care_adu_q_1_f1 | grandch2b6 | [[ACTQ]] | 60-80 | | 1 time per 3 months | 1 keer per drie maanden | grandchildren_care_adu_q_1_g1 | grandch2b7 | [[ACTQ]] | 60-80 | | 1 time per half year | 1 keer per half jaar | grandchildren_care_adu_q_1_h1 | grandch2b8 | [[ACTQ]] | 60-80 | | 1 time per nine months | 1 keer per negen maanden | grandchildren_care_adu_q_1_i1 | grandch2b9 | [[ACTQ]] | 60-80 | | 1 time per year | 1 keer per jaar | grandchildren_care_adu_q_1_j1 | grandch2b10 | [[ACTQ]] | 60-80 | === Variables in AUTQ=== | **Label English** | **Label Dutch** | **Code** | **Variable** | **Assessment** | **Age** | | Since when do you give informal care to your partner / father / mother / father-in-law / mother-in-law /son / daughter / son-in-law / daughter-in-law / brother / sister / friend/acquaintance / neighbour / someone else? (month) | Vanaf wanneer geeft u mantelzorg aan uw partner / vader / moeder / schoonvader / schoonmoeder / zoon / dochter / schoonzoon / schoondochter / broer / zus / vriend/kennis / buurman/buurvrouw / iemand anders? (maand) | care_start_adu_q_1_a1-a14 | INFCARE3A1-14 | [[AUTQ]] | 18+ | | Since when do you give informal care to [this person]? (year) | Vanaf wanneer geeft u mantelzorg aan [deze persoon]? (jaar) | care_start_adu_q_1_b1-b14 | INFCARE3B1-14 | [[AUTQ]] | 18+ | | was there a period in which you could not do your normal duties (e.g. work, school, household) because you were providing care for [this person]? | hebt u een periode niet uw gebruikelijke taken (bijv. werk, school, huishouden) kunnen doen doordat u voor [deze persoon] zorgde?| care_burden_adu_q_1_b1-b14 | AUTISME14A-N | [[AUTQ]] | 18+ | | how much time do you need on average to care for [this person]? | hoeveel tijd hebt u gemiddeld nodig om voor [deze persoon] te zorgen? | care_time_adu_q_a1-a14 | AUTISME15A-N | [[AUTQ]] | 18+ | | (Beginning) dementia/memory problems / what is the cause of the need for help of [this person]? | (Beginnende) dementie/geheugenproblemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]? | recipient_cause_adu_q_1_a1-a14 | INFCARE14A1-A14 | [[AUTQ]] | 18+ | | Mental problems / what is the cause of the need for help of [this person]? | Psychische problemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]? | recipient_cause_adu_q_1_b1-b14 | INFCARE14B1-B14 | [[AUTQ]] | 18+ | | Physical problems / what is the cause of the need for help of [this person]? | Lichamelijke problemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]? | recipient_cause_adu_q_1_c1-c14 | INFCARE14C1-C14 | [[AUTQ]] | 18+ | | Mental disability / what is the cause of the need for help of [this person]? | Verstandelijke handicap / Wat is de oorzaak van de hulpbehoefte van [deze persoon]? | recipient_cause_adu_q_1_d1-d14 | INFCARE14D1-D14 | [[AUTQ]] | 18+ | | Behavioural problems / what is the cause of the need for help of [this person]? | Gedragsproblemen / Wat is de oorzaak van de hulpbehoefte van [deze persoon]? | recipient_cause_adu_q_1_e1-e14 | INFCARE14E1-E14 | [[AUTQ]] | 18+ | | Other / what is the cause of the need for help of [this person]? | Anders / Wat is de oorzaak van de hulpbehoefte van [deze persoon]? | recipient_cause_adu_q_1_f1-f14 | INFCARE14F1-F14 | [[AUTQ]] | 18+ | | Diabetes / which disease or disorder was the cause of the care requirements of [this person]? | Suikerziekte / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_a1-a14 | INFCARE15A1-A14 | [[AUTQ]] | 18+ | | (Effects of) a stroke, cerebral hemorrhage, cerebral infarction, TIA / which disease or disorder was the cause of the care requirements of [this person]? | (Gevolgen van) beroerte, hersenbloeding, herseninfarct of TIA / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_b1-b14 | INFCARE15B1-B14 | [[AUTQ]] | 18+ | | Heart failure / which disease or disorder was the cause of the care requirements of [this person]? | Hartfalen / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_c1-c14 | INFCARE15C1-C14 | [[AUTQ]] | 18+ | | Cancer (malignancy) / which disease or disorder was the cause of the care requirements of [this person]? | Een vorm van kanker (kwaadaardige aandoening) / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_d1-d14 | INFCARE15D1-D14 | [[AUTQ]] | 18+ | | Asthma, chronic bronchitis, lung emphysema, COPD / which disease or disorder was the cause of the care requirements of [this person]? | Astma, chronische bronchitis, longemfyseem of CARA/COPD / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_e1-e14 | INFCARE15E1-E14 | [[AUTQ]] | 18+ | | Depression / which disease or disorder was the cause of the care requirements of [this person]? | Depressie / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_m1-m14 | INFCARE15M1-M14 | [[AUTQ]] | 18+ | | Anxiety or panic disorder / which disease or disorder was the cause of the care requirements of [this person]? | Angst-/paniekstoornis / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_n1-n14 | INFCARE15N1-N14 | [[AUTQ]] | 18+ | | Dementia / which disease or disorder was the cause of the care requirements of [this person]? | Dementie / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_o1-o14 | INFCARE15O1-O14 | [[AUTQ]] | 18+ | | Kidney disease / which disease or disorder was the cause of the care requirements of [this person]? | Nierziekte / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_u1-u14 | INFCARE15U1-U14 | [[AUTQ]] | 18+ | | Autism/Autism spectrum disorder / which disease or disorder was the cause of the care requirements of [this person]? | Autisme/autisme spectrum stoornis / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_v1-v14 | INFCARE15V1-V14 | [[AUTQ]] | 18+ | | Rheumatism/joint problems / which disease or disorder was the cause of the care requirements of [this person]? | Reuma/gewrichtsklachten / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_w1-w14 | INFCARE15W1-W14 | [[AUTQ]] | 18+ | | Other / which disease or disorder was the cause of the care requirements of [this person]? | Anders / door welke ziekten en/of aandoeningen is de hulpbehoefte bij [deze persoon] veroorzaakt? | recipient_disorder_adu_q_1_t1-t14 | INFCARE15T1-T14 | [[AUTQ]] | 18+ |