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--- bigq [2023/02/09 13:13] – simone
+++ bigq [2025/02/05 13:49] (current) – external edit 127.0.0.1
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 ====== Big Data (BIGQ) ======
-Big Data is the name of an [[additional assessments|additional questionnaire]] performed in collaboration with the [[https://www.rug.nl/research/epidemiology/?lang=en|department of epidemiology]] at the UMC Groningen, aimed to acquire insights into the differences between participants and refusers of participation in a Dutch population-based biobank (i.e., [[start|Lifelines]]).\\
+Big Data is the name of an [[additional assessments|additional questionnaire]] performed in collaboration with the [[https://www.rug.nl/research/epidemiology/?lang=en|department of epidemiology]] at the UMC Groningen and the department of Social Psychology at the University of Groningen, aimed to acquire insights into the differences between participants and refusers of participation in a Dutch population-based biobank (i.e., [[start|Lifelines]]).\\
-===== Protocol & response =====
+The Big Data variables are available for use for all researchers and can be requested through the catalogue. Questions to the contact person of the additional questionnaire can be asked through Lifelines (e-mail data@lifelines.nl). Similar data on refusers of Lifelines participation is available after approval of the research team and per request to the contact person.
-In May 2018, Lifelines invited ~12,000 adult participants to participate in the additional digital questionnaire.\\
+When the BIGQ data has been used in your research, you will have to include the following references:
-~2,200 participants responded (18,3%).
-===== Publications based on BIGQ data =====
+  * [[https://doi.org/10.1038/s41431-021-00997-5|Motives for withdrawal of participation in biobanking and participants’ willingness to allow linkages of their data Broekstra, R. , Aris-Meijer, J. , Maeckelberghe, E. L. M. , Stolk, R. & Otten, S. , mrt-2022 , In: European Journal of Human Genetics. 30 , 367–377]]
+  * [[https://doi.org/10.1038/s41431-020-0701-1|Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands Broekstra, R. , Aris-Meijer, J. , Maeckelberghe, E. , Stolk, R. & Otten, S. , jan-2021 , In: EJHG. 1 , 11-19]]
+===== Protocol & response =====
+In March - May 2018, Lifelines invited ~7,000 adult participants to participate in the additional digital questionnaire.\\
+~2,200 participants responded (31,4%).
-  * Broekstra, R. et al. (2021) Demographic and prosocial intrapersonal characteristics of biobank participants and refusers: the findings of a survey in the Netherlands. Eur J Human Gen 29:11–19.
-  * Broekstra, R. et al. (2021) Motives for withdrawal of participation in biobanking and participants' willingness to allow linkages of their data. Eur J Human Gen, in press.
 ===== Variables =====
-The following variables were collected:
+The large part of BIGQ variables fall into the subsection [[Values, beliefs, priorities]].
+In addition, some questions were asked from the following subsections:
+  * [[Social Value Orientation (SVO)]]
+  * [[Household composition]]
+  * [[Home environment (general)]]
+  * [[Profession]]
+  * [[Household composition]]
+  * [[Education]]
+  * [[Employment status]]
+  * [[Volunteer work (general)]]
+  * [[Subjective health (general)]]